Agoraphobia

Random Mood Drops

It doesn’t matter how many years go by of being mentally ill, there are some things that surprise me, no matter how many times they happen. One of those is the random drops in mood that occur for literally no reason. As I write this, I’m on the verge of tears and have that, oh so familiar, heavy, rock-like sensation dragging down in my chest as if my heart is made of stone. I can physically feel it. This has always been the most persistent and long-lasting symptom of my depression. Depression for me was never just sadness, or numbness, it was the weight in my chest that got heavier and lighter but that never went away. I’ve had it since I was 15, 12 and a half long years and there’s not been a day that I can remember when that weight in my chest has gone. My depression is now mild, it remains very stable and manageable thanks to a lot of work on my part to keep it at bay and not let it rise up or take hold of any more of my life than it already has its grip on. But every now and again, for no reason at all, the weight in my chest exponentially grows and it physically hurts. It makes me want to curl up into a ball, go to bed and sleep for days or burst into tears. I instantly want to self-harm again despite not having done so in years. It makes me feel sad and guilty and angry and overwhelmed about everything and nothing.

Despite dealing with this so many times and for such varying periods, it’s still a shock every time. I never get used to it. I still can’t ever find a reason why it happens. It just does. It just is. It takes my breath away with how fierce and strong it is. It’s like someone sitting on your chest, you can’t breathe, you can’t think or concentrate. Everything suddenly feels pointless and dark. Breaking out of this is hard, each and every time. There’s no reason so there’s no specific fix or problem to solve. It just is.

Today, I’ve had a good day. I spent time at my Nana’s helping her clear out her house and tidy up. We had a lovely time and some really nice conversation. I was tired when I got home and slept for a bit. I felt much brighter and perkier after that but quickly my mood just dropped. Nothing happened, nothing that I can identify caused it. My mood just dropped off a cliff and here I am, feeling sad, feeling weighed down and already struggling to remember feeling better or brighter even though I know I did just a few short hours ago.

Although it shocks me every time, I have at least learnt to stop being scared by it because I know the feeling will pass. I never quite know when or how and occasionally it lasts for a couple of days but usually sleep, distraction and care from my loved ones helps pull me back out of the pit and gets me back on the even keel that I’m used to. Hopefully the feeling will pass quickly this time and the mighty weight that’s currently in my chest will go back to being pebble-sized. I’m not sure if these random mood drops will ever stop, they seem to be very similar to the random attacks of anxiety about nothing that I also get. It’s so disconcerting not knowing why or how something has occurred or when it’ll go or when it’ll next come back. It’s horrible feeling so vulnerable and not having control. Hopefully tomorrow will be a better day.

Update – Caring for Relatives, Life Changes and More (1st May 2019) – Video Post

This video was recorded on the 1st of May, 2019. It provides an update on where I’ve been, how I’ve been and what I’ve been doing that’s kept me busy and away from recording or writing. I talk about being a carer for my Grandad and what life is like now I’m not one anymore and how lost I’m currently feeling.

Five Years On – Five Years Of…..

I never know where to even start these posts. You all know by now that I’m one for anniversaries but as more of them pass, I’m increasingly put off and seem to mentally avoid them. I haven’t even known what to title it because how on earth do you sum up five years of being ill? How do you title something detailing what it’s been like to be unwell for such a long period of time?

Whenever I write a blog post, I try to have a plan. I’m quite a spontaneous writer, I break all of the writing and blogging rules about having a word limit and a posting schedule. As you’ll have seen, I post as and when something comes to me and sometimes that’s multiple times a week and other times I go for months without having anything to share at all. But, I do usually have a reason to post and something specific I want to say and that’s why these anniversary posts are so difficult to write because usually the only reason to write them is the date and because I feel I ‘should’ have something to say rather than actually having anything to say.

For the most part, I try to ignore the time of year, ignore the dates and don’t let them mean anything. But five years feels like a hell of a milestone and feels like I really should be saying something even though I don’t actually know what that is. My life is currently in upheaval with a huge amount of change going on and even more on the way. My grandparents who are a huge part of my life and who I’ve spent increasing amounts of time with over the last few years are moving away, it’s not that far but for me it’s a world away. I’m currently at their house at least 4 days a week, for about 30 hours as I’m a carer for my Grandad and in the next few weeks they’ll be an hour’s drive away and I currently can’t get there. I may discuss all of that at a later point but those are the basics and it’s the reason why I’ve been so quiet on social media and my blogs and YouTube Channel because all of my mental capacity is taken up being there or processing everything that’s going on and changing. It’s a hell of a lot to take in.

In some ways, I’ve been really glad of the distraction because although I’ve noticed the date approaching of me being ill for five years, I’ve not really had a chance to focus on that or be sad or really feel anything about it. I’m quite grateful for that. Five years is such a long time, it’s over a sixth of my life and I still don’t know how or when I’ll get better. Being a carer and being needed has definitely helped me to push myself harder than I thought it possible to push and I’ve certainly been noticing the changes that that has caused in my confidence levels and belief in my ability. However, it’s a very specific set of circumstances that those changes have occurred within and I feel very worried and doubtful that I can translate those to any other situations. I’m not being negative, I’m going to do everything in my power to continue to go out and not go backwards when my grandparents move and I no longer ‘need’ to go out but even though I’m managing that, I still can’t just make myself go for a walk or set foot inside a shop. There is such a mental block in my brain and somehow ‘needing’ to do something overrides that a bit but as soon as the task is a choice, I can’t do it. Even artificially ‘needing’ to do something isn’t enough to make me go. There are so many things that I want to do but wanting it isn’t enough to get me out of my front door. The situation with being a carer for my Grandad seems to have special status in my brain and overrides all sorts of things that little else manages to do. Mostly I’m just grateful that it has, that I’ve been able to build up my confidence and start meeting new people (the other carers on the team) and for it not to be so obvious outwardly that I’m suffering so badly with anxiety.

I do worry a lot at the moment about how I’m going to cope once my grandparents leave though, everything in my own life has been on hold since before January because I just can’t concentrate on anything else and some time soon, they just won’t be here anymore and I’ll go from every waking hour, and many asleep hours too, spent thinking about them to this void where they’ll be gone and my brain will probably still be so full that I won’t be able to do anything to redirect or distract myself. I’m trying really hard to be kind to myself, to be forgiving and accepting and just let myself feel whatever comes up but oh my God, it’s exhausting! My emotions are all over the shop and I can’t keep up. I’ve always been quite emotionally stable, often not in a great way but still, I’ve always felt quite stable and so I never know what to do when these periods of turmoil come up and not only is everything in my life changing, I’m also all over the place with my feelings about it all too. I’m worried about the time immediately after they leave. I have so many things and activities and projects to work on but they all seem to require concentration and even the most basic levels of that are out of my reach at the moment. I keep wanting to record videos explaining what this is like to live through because I know I’m not alone in experiencing this but I never get as far as even setting up a tripod and always remember at ridiculous moments when it’s not appropriate to be filming. I also have no idea what would come out of my mouth which is the status quo for me but when my concentration is off, it’s even more of a surprise and I feel like a liability so I tend to just avoid all of that. At least when writing a blog, I can edit it and take chunks out if I really need to, though that is something I try to avoid as I don’t like filtering things.

As you can probably tell, my brain, my thoughts and feelings are all over the place and my life circumstances are too, there is so much change coming up and I don’t know what’s happening from day to day, let alone from month to month. I have a lot of hopes about things I want to do and things I hope to achieve and I’m hoping that maybe once I have more time to myself and once my brain has finally cleared a little that I might be able to concentrate and focus and achieve some of those things. I’m hoping I might also be able to make some more significant and sustained improvements that aren’t so situation-specific. That’s a lot of hoping right there but that’s something I’ve learnt throughout being ill, I can’t plan, I can’t expect or demand but I can hope and I put all of my energy into that and then trying to make those hopes come true without placing expectations or time limits on it. It means that I’m always working and travelling in the right direction and not failing just because I’ve not achieved something yet.

Five years on, I’m not where I hoped or expected to be, but I’m still here, I’m still fighting and that’s enough for me.

Finding the Words

Finding the Words

I don’t even remember the last time I wrote a blog post. I keep meaning to. I keep trying to think of things to say, important messages to impart. Something. Anything! And I never even get as far as opening a Word document. Nothing comes in to my head and my mind stays blank.

So what’s changed? Here I am writing and you’re there reading. Well, I decided to take a different route and think about why I had nothing to say. After all, it’s so unlike me to not have something to say and not be full of ideas, I’m usually exploding with multiple projects and picking one is what I find hard. The reason I’m struggling so much is because my brain capacity is taken up elsewhere and I’m pretty rubbish at multi-tasking. As many of you know, I’m a carer for my Grandad and have been for a number of years but the time I put into this has drastically increased since Christmas. When I began, it started at 2 or 3 hours a fortnight and over time it gradually increased to being there up to 2 days a week for a few hours each time. By Christmas, I was there about 4 days a week and by January I was there 5 days a week including all day on one weekend day. As of this month, I’m due there 28 hours a week. There are so many changes, so many things to think about and work through and take in. I’m coping surprisingly well, I’m actually really proud of how much I’m taking it in my stride but it’s definitely come at the cost of me focusing on anything else. I can’t concentrate at all. My brain just feels like mush. I spend hours every day just staring into space and thinking about all of the things that I could and should be doing and yet never quite getting as far as starting any of them. Most of the time I don’t even know where to begin. It’s making it really hard to get on with stuff, to do anything particularly normal or anything that involves any sort of brain power.

I keep trying to think of things to say, topics to write about and ways in which I can help others by writing. But I just draw a blank the entire time. In fact, my brain only seems to think vaguely clearly when I’m actually at my Grandparents’ house and doing my job there, the rest of the time it’s like it’s on standby or something. I’m hoping that just by writing something, that this might help jump start my mind into thinking about things to write and not finding the whole task so overwhelming. I miss having a voice, I miss speaking about these issues and talking to people who are like me, who understand what it is to go through these conditions and these experiences. But I guess my mind’s way of coping with the difficult things I’m dealing with in my personal life is to shut down from everything else and just focus on the one issue. Nothing else manages to creep in. I have a lot of free time outside the time that I spend with them and yet I still don’t manage to keep on top of emails, remember to message friends back or keep on top of the washing up. I feel like a failure, like a burden because despite the fact that I’m working fewer hours than my partner and that this is by far the most hours I’ve worked during the 5 years I’ve been ill for, I still suck at being a housewife, I still can’t do even basic tasks and he still has to help or do so many things that just shouldn’t be his responsibility. It’s really hard to know where the line is between what I should and shouldn’t be doing and I know I have to be really careful not to push myself too hard because despite not coming out the other side yet of the breakdown I essentially had 5 years ago, I know I could have another one now and possibly get even more ill than I was when this began. I can’t afford to do that. I couldn’t cope with that. So I’m trying really hard to be kind to myself to do what I can and accept what I can’t and to ask for help with the multitude of tasks that evade my abilities. It doesn’t come easily.

On top of all of this, my memory has got way worse. This is a particularly cruel blow and makes everything so much harder. I’ve always had a fantastic memory and I miss it so much whenever it drops and it’s the worst it’s been for months at the moment. I have to write everything down and then have to try and leave the writing in obvious places so I actually remember to read and work through the to-do list. Even basic stuff that would usually be so obvious to me just isn’t and doesn’t get done unless I’m reminded by a list. I think old age is kicking in at 28! I jest. I know that this is one of the brain’s protective mechanisms and that it’s also a sign that although my body feels ok, my anxiety levels aren’t increasing and I don’t feel physically sick the whole time, I’m only really holding on by my hands now. I’m definitely not at fingertips point, I’ve got a fairly good grip of things at the moment but it wouldn’t take a lot for me to become distracted and my grip to loosen and the whole situation to become WAY more precarious. It’s a weird place to be. I would have expected to be feeling horrendous. I’m under a lot of pressure, there’s a lot resting on me and my family are currently reliant on me being able to do the shifts I’ve signed up for because none of the other care team members can do those at the moment. Normally, pressure is my absolute nemesis. So I’ve certainly been wondering if I’m finally getting better. In some ways I think I might be. I’m certainly coping better with this whole situation than I was and finding it easier and more comfortable to travel to my grandparents’ and to be there. I’m sure a huge part of that is that I’m finally now desensitised to it and that after the umpteenth time of going, it’s got easier. It’s also partly because I’m needed. I take a lot of responsibility for things and if I’m given a task then I’m not one to drop that or not do it properly, I always do things to the best of my ability and won’t let people down unless I absolutely have to. I’m needed at the moment and I can’t let them down. But it’s also very apparent to me that I’m still very ill. Even though I go out 4 or 5 times a week to my grandparents’, I still can’t go into a shop. I still can’t just go for a walk randomly and I still can’t take my bins out. It’s ridiculous and makes absolutely no sense to me but that’s something I’ve certainly learnt about these conditions, they don’t conform to a set of rules and there’s no guessing what will or won’t change at any given time or for any given reason. I’m better at being able to go out to my grandparents’ house, to spend time there and remain calm, even when difficult circumstances arise there, but the rest of my life and capacity seems to be on hold and so all of my resources are being used up there leaving me with nothing left for things at home. This is alright for the short term and we’re trying to put things in place to allow this to not become a long-term thing.

I often wonder how I’ll be when the need for me comes to an end and I’m back to having unlimited free time and nothing specific to fill it with. I don’t cope very well without a project. I really hope that the words and ideas will have returned to me by then so I can take time to readjust and express what this has been like and process the difficult parts. I hope I can continue to be a voice for the mentally ill and for myself and that inspiration will strike soon. I really miss writing, I miss expressing myself and I miss making a difference and I hope that I’ll be back to writing and recording videos again soon. I hope I’ll be able to get back to colouring and writing reviews and being more productive but right now, my brain is mush and getting any words out at all is more than I’ve managed in months so this jumbled stream of consciousness will do for now.

If you’ve got any suggestions or requests for ideas of things to write or video about then do get in touch because I’m absolutely open to ideas and seeking inspiration from anywhere I can find it!

Would You Wish Away Your Illness?

Would You Wish Away Your Mental Illness?

Someone recently asked on Twitter, would you get rid of your mental illness if you could? You can read the original thread and the replies here.

Fairly obviously, my instant reaction and answer was yes and I’d question the motives of anyone who’d say otherwise. However, I started thinking on it a bit further and realised that the answer isn’t quite so simple. I don’t think I’d ever say no to getting rid of my mental illnesses but I’m not sure it’s a 100% yes, especially not if it meant that I’d never had them. While I would never sign up for being ill, would never wish it on anyone else and have spent countless hours, days and probably weeks of my life wishing it away, the experience of it has changed me and not all of those ways have been for the worst. I’ll point out here that I’m not grateful for these experiences, this isn’t some evangelical post where I change your point of view about suffering and “teach” you that really it’s an “opportunity for growth and learning”. It’s not. Suffering is exactly that, suffering. It involves being uncomfortable and worse and it’s sure as hell not something I want to have to continue to experience (albeit I don’t have a choice about that one), or something I’d sign up for again. However, without the experiences that I’ve had because of mental illness, I wouldn’t be who I am today. I’m a firm believer that we are a product of our experiences and so without them we wouldn’t be the same.

I would never have done a psychology degree without becoming mentally ill. Mental illness and the way the brain worked weren’t even on my radar until I developed depression right before my 16th birthday. I was going to pursue geology and hoped to work on oil rigs getting very rich whilst discovering oil around the world. If not that then I was going to become a scientist or teacher. I wasn’t going to work with sick people. Not ever!

If I hadn’t become mentally ill then I wouldn’t have been forced to take a gap year. I wouldn’t have gone to the same university. I wouldn’t have met the friends I did on my degree course. I wouldn’t have met my partner, Joe, the man I hope to spend the rest of my life with. I wouldn’t have saved lives at work.

Without becoming mentally ill, I wouldn’t now be a carer for my Grandad. I wouldn’t have the understanding I do about his condition (Posterior Cortical Atrophy, a rare form of Alzheimer’s) and I wouldn’t be able to support my Nana in her role as his primary carer. I wouldn’t be able to explain his behaviour to her or be as understanding and sympathetic to him when he tells me the same story or asks me the same question for the umpteenth time. (For the record, I don’t mean that one needs to be or have been mentally ill in order to do these things, simply that they wouldn’t have occurred for me had I not been). I would be working a normal job and have very little spare time to even visit them, let alone spend time in a caring role two or more days a week.

If not for mental illness, I wouldn’t have created my blog or my social media channels, I wouldn’t be helping others and I wouldn’t be as nice as I am. I was a very opinionated child who thought they knew it all and would have quite happily voiced my almost certainly stigmatised views about anyone else who was mentally ill. I would have thought they just needed to pull themselves together and snap out of it, to be stronger willed and to just get on with it and suck it up. I wouldn’t have been half as empathetic and sympathetic as I am now. I would have remained far more ignorant and arrogant. I also wouldn’t have learnt about others as much as I have because through being mentally ill I’ve learnt to ask questions, to not assume, and to find out directly from others about their experiences and motivations.

If not for mental illness, I don’t actually know who or where I’d be, I don’t know what I would have become or what I would be doing but I know it would be different and I know I wouldn’t be as caring. I’ve always tried to remain separate from my conditions, to have them but for them not to have me and more importantly, for them not to become me. But, when you’ve lived with something for such a long time, there’s no way that it won’t affect you. You can’t stop it from seeping in and from making changes. There are the obvious changes like the constant worry, the dark thoughts and the incessant need for control but you don’t notice the more subtle changes or the positive ones and you’re never quite sure whether they’d have happened regardless or are purely a result of the conditions. If not for mental illness, I wouldn’t have self-harm scars, I’d have eyebrows and eyelashes because I wouldn’t be incessantly pulling them out due to Trichotillomania, I wouldn’t have had an eating disorder. But I also wouldn’t have the friends that I met when I was an inpatient, I wouldn’t have got into most of the hobbies I have now including photography, colouring and crochet, and I wouldn’t have the problem-solving abilities that only someone who’s imagined every single possible and impossible scenario can develop.

There are many ways in which my life would be better if I weren’t and never had been mentally ill, I’d be in full-time work, I’d be well on my way to owning a property, I probably wouldn’t have completely written off the idea of having biological children and I’d be able to do anything and everything I wanted to without the restrictions of my conditions. But I don’t think I’d notice all of the little things I do, I don’t think I’d be as observant, as grateful, or as driven and determined as I am. There’s little else that will focus you quite as much as having to fight through adversity.

As I started off by saying, I wouldn’t wish this on anybody and I’d wish it away in a heartbeat but I’m not sure that I could wish away all of the ways in which it’s changed my life because without mental illness, I’m not sure I’d be the same person, I’m not sure I’d be who I am, and I’m not sure I’d even like who that was and so when answering whether I’d get rid of my mental illness if I could then the answer is yes…..but….. The things that I’ve gone through are in the past, even the things that happened yesterday or even a minute ago and so I’d allow those, I’d wish away the conditions right now but I’d want the changes that have occurred to stay. I couldn’t have studied a better degree, I couldn’t have met better friends, I couldn’t have wished for a better partner and I couldn’t have picked a better field to get a career within and without mental illness I’d have none of those. So I’m really ready to no longer be mentally ill, to have mental illness as part of my past rather than my present or future, but I wouldn’t change much at all about the past because if I did, I wouldn’t be who I am today and much as that includes being a huge heap of worry, anxiety, and nervous energy, I couldn’t be prouder of how kind and caring I am and the fact that I’m turning the negatives of my own conditions into positives to help others who are suffering too.

Insomnia and Mental Illness: Its Impact and Effects – Video Post

My latest video about insomnia and its effects on mental health. Going through a severe phase of it for about 2 months is now leading to personality changes and an inability to tolerate much and this video goes into detail about the impact this has on my life and my health.

Considering Self Harm? Here's What You Need To Know First

Considering Self-Harm? Here’s What You Need to Know First.

This post may be a little triggering for those who self-harm, however, I have tried to write it sensitively and most certainly haven’t glorified it or written about it in a positive light, nor have I vilified or criticised it. Please take care if you choose to read it and seek support if necessary.

I’m guessing that the readers of this post will mostly fit into one of two categories, either you’re considering self-harm, or you’re wanting to know why someone would consider self-harm. Hopefully I can help both groups. Self-harm is the act of harming oneself, in any of a multitude of ways, which causes pain and either temporary or permanent injury. I’m not going to list all the ways in which this is done and I’d seriously advise against looking a list up too because it just tempts those of us considering it to think of ever more inventive ways of harming and researching this topic can make you more likely to think about self-harm and ultimately do it. If you’re seriously considering self-harm then please read the whole of this post before acting on your thoughts because this is what I, and others I know, wish I had known before I hurt myself for the first time.

It’s Addictive
The first thing you need to know which I wish I’d known before starting is that it’s addictive. Yes, you read that right, hurting yourself becomes addictive and while most of us start doing it in order to exert some control and express pain, it quickly becomes addictive and out of control and rapidly becomes part of the problem which doubles the number of issues you’re dealing with. It’s addictive because it releases adrenaline and along with adrenaline you can get a release of endorphins, just like when you do intense exercise or overcome a fearful situation, you get a high afterwards because of the hormones coursing through your system. The problem is, that these highs get shorter and shorter and you therefore have to harm yourself more often or more severely in order to get the same effect. I have a long history of cutting myself, never severely enough to need stitches or any sort of medical treatment but I went from doing it once a fortnight to 4 times a day and running out of “safe” spaces to cut myself quicker than I was getting relief from it. It rapidly stopped helping me and became a problem of its own and a huge part of this was because I became addicted to it and when I was actively harming myself I would obsessively think over how, where and when I next could. It was a really dark few years of my life and not something I wish to repeat.

People finding out
Once you start, you’re pretty much starting a timer until someone around you finds out. This is never easy. It never gets easier. I still remember so many of the incidents of people around me finding out I was cutting myself at 16 and 11 years on I try very hard to not remember them because it still causes me pain to relive those moments. Seeing the pain and hurt on other people’s faces is really tough, feeling guilt, fear, feeling like you’ve let them down is really hard and I can guarantee that you will feel that way. When you’re young it’s very difficult to cover up any injuries and people aren’t half as stupid as you might think, the excuses of a cat scratching you or falling into something will only work once or twice, they won’t work multiple times a week and people react very badly when they find out that you’ve lied to them. Many take it very personally and blame themselves. In many ways, people finding out is the best solution because then you don’t have to deal with the problem on your own anymore but this assumes that whoever finds out is understanding and sympathetic, that may well not be the case because most of the time they’ll find out by accident, when you’re caught off guard and the situation will shock you both and neither of you is likely to react well under those circumstances.

Education and Work Problems
Self-harm isn’t accepted in education or workplace settings. If you are found out to self-harm at school, college, uni or work then you could be asked to leave. You will have to disclose your history of self-harm on occupational health forms which then leads to a fun chat with someone from occupational health at each company you work for having to explain to you that it’s unacceptable to self-harm at work or school and that any injuries must be sufficiently covered up not to arouse suspicion and that if you’re found to be self-harming within the institution that your contract or course will be terminated. This isn’t fun for anybody involved, it’s not the end of the world but it’s another thing that I wasn’t aware of until after I’d started and it was too late. I’ve never self-harmed anywhere other than my own home and was rarely tempted to do so either but if your main coping strategy is self-harming and something triggers you while you’re at work or school then you’re going to need to have a very good plan in place for how you’re going to cope with that without breaking those rules and jeopardising your future.

Scars
Scars don’t fade half as much as you think. I convinced myself that the scars would go really quickly each time and that I wouldn’t be left with any permanent reminders. This isn’t the case. Some do fade really quickly and keeping your injuries clean, allowing them to heal as quickly as possible and moisturising your skin certainly helps but most scars don’t disappear quickly at all. I had chickenpox scars as a child, all of which have gone, I don’t have a mark on me from the various times I must have scraped my knees or ended up with accidental injuries that every child accrues. But self-harm does cause scars and you need to be aware that while you might be fine with that now when you’re feeling desperate and looking for anything that might offer temporary relief, you may well not be fine with it later. Personally, I’ve made peace with my scars, I know that those actions kept me alive and if they don’t fade any more than they have then I’m ok with that but some of them I do wish weren’t there. I’ve got scars on my right leg that are very obviously from self-harm and that can make me quite self-conscious in any sort of swimsuit. I also have them on my left forearm and these are faded but noticeable and people, especially inquisitive children, do sometimes ask and it’s a bit tricky to think up excuses on the spot or decide whether you’re going to tell the truth. Scars are a very permanent reminder of how bad you felt, sometimes they can help remind you of what you’ve overcome and in that way they can almost be positive, but they’re also a constant reminder of how bad things got and a reminder of that coping strategy having been an option even years after you’ve managed to stop. People aren’t always very understanding about self-injury scars and can be pretty judgemental and you need to also be aware that if you have them in very prominent places that are tricky to cover up, these may possibly cause you problems with employment and possibly other opportunities.

Excuses and lying
Unfortunately, self-harm turns the most truthful of us into liars. I’ve always prided myself on telling the truth and always being honest but I absolutely wasn’t when I was self-harming. I couldn’t be. It’s not nice having to keep secrets from people or outright lie to them and then come up with excuses for why you’re wearing long sleeves in summer or flinching when someone hugs you too tight. When you’re suffering from mental illness you can feel really lonely and isolated, self-harm just makes this worse, you feel detached from people, you don’t want them getting too close to you physically or mentally and the lying drives a wedge in ever further. When it eventually comes out that you’ve been lying it can take ages to rebuild trust because most of the people around you won’t understand that you were only lying to cover up the self-harm, they’ll think that you can’t be trusted about anything and that’s beyond infuriating and upsetting. You’ll spend countless hours trying to think up excuses, work out outfits that won’t arouse suspicion and engineer situations so that you don’t have to change clothes in front of people or stick to a uniform code. It’s endless and it just exacerbates the stress and underlying conditions that you were originally trying to cope with.

It’s often mistaken for a suicide attempt
This is a difficult section to write because there are kind of two distinct types of self-harm, there is the type that is used for relief, to express pain and to help cope and then there is the more suicidal type which is either a suicide attempt or a very serious cry for help which requires immediate intervention. Many people think that all self-harm is a cry for help and this isn’t true but equally it should never be dismissed or viewed as attention seeking. Some people do harm themselves and then get deliberately “caught” because they don’t know how else to express the pain they’re experiencing. This isn’t done for dramatic effect, it’s done as a last-ditch attempt to get help and to have their feelings noticed, validated, and hopefully treated! Be warned that if you do decide to self-harm it’s a slippery slope and it’s often mis-interpreted by those around you who don’t understand the thought processes behind it. To someone who’s never self-harmed or even considered it, this world is very alien and it’s something they’ll never fully understand, they simply can’t, but once they know you’ve been covering it up, lying and making excuses and that in their mind you “can’t be trusted” they’ll make all sorts of assumptions and jump to all sorts of conclusions and this can mean that the situation gets escalated way beyond your control, really quickly. It’s really scary suddenly being unable to control what’s happening to you and you may get forced to go to the doctors or hospital and if you’re deemed enough of a risk to yourself you may be asked to go into hospital either as a voluntary/informal patient or under Section if you refuse and your risk is deemed high. While this is often necessary, it’s not nice to be on the receiving end of. I’ve worked with countless numbers of patients who this has happened to and it’s really hard for them to come to terms with and can cause a temporary deterioration because they feel so let down or betrayed or misunderstood. Learning more positive coping strategies rather than resorting to self-harm is the absolute best option and while it may not be such a “quick fix”, it will be infinitely more useful in the long run.

So, what can you do instead? There are heaps of things you can do that might help and different things work for different people so just because one thing doesn’t help doesn’t mean that the rest won’t. Some people need to feel pain and so pinching themselves or snapping a rubber band on their wrist can help. Others need the adrenaline and therefore doing high intensity exercise is a great, healthy alternative, especially high impact activities like running or boxing where you’re physically exerting energy, stress, and any bad feelings you’re currently experiencing. Often, self-harm is used as a way to express pain that you don’t know how else to express, learning to talk about these feelings or write them down or draw them can be really beneficial. Distraction is also a great tool and especially activities that use your hands so that you’re not tempted to start hurting yourself, things like adult colouring, knitting, crochet, sewing, baking, anything that uses your hands in a repetitive way is a great thing to keep you distracted and keep your hands busy and safe. Steer clear of activities that involve using risky objects for you, the less temptation you have around you, the better. Don’t make implements easy to get hold of, if you use something specific to hurt yourself then make it inaccessible, don’t get rid of it unless you want to because sometimes just knowing you could hurt yourself is enough to make you delay doing it or even not do it at all so removing all implements is not necessarily the best option but make it difficult to access them so that you can’t do it without thinking. Wrap them up, put them in a box, put them at the back of your wardrobe or under your bed with stuff dumped on top so that you have to go to some effort to reach it and in the process be thinking about whether you actually want to do it at all. If you’re going to hurt yourself, do it safely, make sure what you’re using is clean and that you keep any injuries clean too and if you think you’ve gone too far then please seek medical help. We’ve all heard horror stories of people seeking medical help and being treated very badly but times are changing and most medical staff are better trained now to deal with self-injury and help rather than judge. Please seek help if you need it. Some of the best ways of coping are simply to try to delay hurting yourself. Saying you’re never doing it again is really difficult and most of us who’ve managed to stop haven’t actually made that choice. While I’ve not harmed myself in at least 3 years, I haven’t written off the possibility of doing so again in the future and actually, by knowing it’s an option, it makes it much less likely that I’ll actually act on it. In many ways it’s like dieting, if I told you that you could never eat a cake again then all you’d think about or crave is cake, whereas if I told you that you could have cake whenever you liked and there was always a cupcake waiting in your freezer to be defrosted then you might find it much easier to have it in an hour, or three, or tomorrow, or next week, knowing it’s an option makes it much easier for most people to not have to act on it right away.

Finally, if you want to talk about how you’re feeling but don’t feel able to do this with anyone you know then please do contact a helpline or charity, there are heaps of them out there and they deal with issues like this all day, every day and have lots of training to be able to listen and help. It’s amazing the difference that can be made just by knowing that a stranger has volunteered to spend their time talking to people like you in the hopes that it might brighten your day just a little, it’s at least worth giving a try. This doesn’t just have to be done by phone, many charities now offer a huge range of talking services including face-to-face talking, phonecalls, texting, email, live online chat and more. If none of this has manged to put you off self-harming then fair enough, it wasn’t specifically aimed at doing that, I just wanted to write the post that I wish I’d have been able to read before starting, I’m not sure that knowing all of this would have stopped me but I’m sure I’d have started later and I’d have been better prepared and less scared about what came next so I hope that this has helped in that way.

If you know someone who you suspect or know is self-harming then try not to panic and please talk to them. Find out their motivations and find out how serious they are, accidents can happen when self-harming and those in deep despair don’t always make the greatest choices about hurting themselves in safer ways, try to find out the extent of the problem and advise them if you can. If you’re worried then seek professional help but try to be as honest as possible with the person because going behind their back will only cause more problems. The absolute best thing you can do is talk about it so that the person is no longer struggling alone. Show them you care and don’t berate or criticise their self-harm; they’re not doing it to you, they’re not ‘acting up’ and they’re very unlikely to be doing it for attention. Self-harm is almost always an expression of feelings that are overwhelming, unbearable, and intense and we need help to discover healthy and safe ways of expressing and dealing with this pain, not judgement for the way we’re currently handling it which is the only way we know how. You can make such a difference just by talking, listening, and showing that you care.

Coping with Unexpected Things – What Happens When You’re Mentally Ill? – Video Post

This video was recorded on the 28th of August 2018. Coping with unexpected things can be a real challenge but when you’re mentally ill it really throws you off course. Something as small as a leak can ruin your day and even dealing with how to fix those things is harder when you’re coping with mental illness symptoms on top of trying to be rational and solve problems. This video explains what it’s like when these things happen and shows the effects it has on me, even hours after the event.

Update – Insomnia, Trichotillomania, IBS and Anxiety (27.08.18) – Video Post

This video was recorded a couple of days ago and gives an update on where I’m at now, both the good bits and the bad bits. Living with mental illness is very much like riding a rollercoaster, constantly up and down and always changing unexpectedly. As always, it’s a very honest account of how I’m doing and what’s going on for me, it’s not sugar-coated. And if you don’t get as far as the end then my plea there is for people to make suggestions for future video ideas so that I’m creating content that you actually want to watch so please do let me know in the comments or privately via the Contact Me tab what you’d like me to be talking about. Thank you.

Dear Psychiatrist – July 2018

Earlier this year, I was sent a letter by my psychiatrist stating that it had been 2 years since our last contact and asking me to update him about how I’m doing and whether they can provide any help. I struggled with this. 2 years is a long time, especially when you hadn’t realised it had been that long and trying to put down in words how I’m doing, how I’ve changed in 24 months, has been really difficult and something that actually made me quite anxious. This might surprise many of you because I blog and vlog about it (albeit not very regularly) but those are done on my terms, they’re about topics that are important to me, at a time that suits me, when it feels right. And often, I take months or even years to hone posts and finally share them with the world. I had originally planned to write the letter the same week I had received his but somehow weeks went by and after writing two thirds of it I just drew a blank. Much as I’m always open and honest, I don’t think on a day-to-day basis about how I am. It’s a running joke with my Nana and close friends that I really have to think properly when they ask me how I am because I’m so used to either saying I’m fine or people not even asking. Seeing how I am in black and white, in polarised terms about improvement and deterioration isn’t easy and having to face the fact that I expected to be back at work and well by now, or at least well on my way there, has been really hard. I had no intention of showing this letter to anyone other than my psychiatrist, and Joe, who I got to proof read it and check it was accurate. It was Joe who suggested I should share it here. I’ve been quite reluctant and despite getting him to take it in to my psychiatrist a few days ago, I’ve just had the Word document sat open on my laptop, not quite ready to post and not quite ready to close it and file it away. It’s nearly 1am and for whatever reason, I’ve finally decided to bite the bullet, to listen and trust in Joe’s wisdom and share this here now. In some ways I think it makes me sound worse than I am but Joe thinks the opposite, that depending on what people focus on in my words, it may well give a less accurate picture and sound like I’m better than I am so hopefully you’ll read it just as it is, the good and the bad, without giving one more weight than the other. I often think that I’m so used to this now, so used to being ill, that I can no longer give an accurate picture, no longer compare to “normal”, or life before these conditions because the memory of that is so faded and distant. Hopefully it’ll give you a bit of a picture of how I am now though and another snapshot into my life.

 

Dear Psychiatrist,

Thank you for your recent letter. Sadly, there isn’t a lot to report in terms of progress or improvement. When I wrote to you 2 years ago, I fully expected to be well on my way to recovery by now but that hasn’t been the case. Having now been ill with these conditions for over 4 years, I’m starting to notice patterns of improvement and deterioration though I seem to have little to no control over these. Certain times of year are worse for me due to increased external demands and I struggle greatly when under pressure or when demands are placed on me. Having said that, I’m doing well at maintaining a mostly positive mood and keeping my depression at bay. I do my best to keep busy and keep my mind occupied with productive tasks so I get a sense of achievement and satisfaction. I do a lot of creative activities including baking, crochet and adult colouring. I am also doing what I can to help others suffering from mental illness and run two blogs and more recently a YouTube channel where I am constantly pushing my boundaries in order to create content to raise awareness, increase understanding and decrease stigma. I remain motivated and hopeful of recovery.

I am also a carer for my Grandad who has Alzheimer’s and go as regularly as I can to my grandparents’ house nearby to look after him. Despite them living in their house for my whole life and me visiting on a weekly basis, my anxiety about doing this has not lessened. For periods it seems to ease up and then comes back with a vengeance and I can identify no reasons for either the positive or negative changes. Currently, I’m feeling more capable and confident whilst at their house and am worrying for less time beforehand and it’s not as severe which is a welcome improvement. I don’t know why this has changed and sadly in the past this has always been temporary but I’m enjoying it while it lasts and trying to maintain and improve my abilities as much as possible whilst not getting my hopes up too high that this will last this time. My IBS has been exacerbated by the anxiety and fairly regularly leaves me unable to leave the flat even when I feel mentally capable of doing so. Last January, I bought a new camera and took up photography. This has been a great tool for helping me stay outside and remaining calm for longer because it provides a great focus and distraction and also requires concentration to get good shots. There are times when I can go out for hours taking photographs with Joe or my mum but it doesn’t get easier and has no consistency; almost every time feels like the first time when I’m trying to get out of my front door. I know the research says that practice makes perfect, that systematic desensitisation will work but that really isn’t my experience though I do still persevere and fight as hard as I can to do as much as possible as often as I can.

The focus of my anxiety seems to periodically shift with one aspect easing up while another gets worse so as soon as I seem to learn a strategy to reduce one lot of anxieties, another lot pops up. For the last year, I have struggled less with being outside in people-free areas thanks to doing photography but I’ve become increasingly anxious about health, getting ill and getting food poisoning. My eating habits have changed, I’m much more cautious about what I eat and have a huge fear of being around anyone exhibiting any symptoms of illness, even a cold. It’s exhausting trying to keep up with the constant changes and having to explain these to others while not even understanding them myself.

In terms of help, if there’s anything I can be offered either in my home or remotely then I’d really like to know. I stopped the therapy I was having via Skype over 18 months ago as it really wasn’t helping and I was making no progress so I’m now dealing with this pretty much alone apart from the support from a dwindling number of relatives and friends. I’m doing a very good job of getting through each day, albeit with a huge amount of difficulty and discomfort but I’m not improving, just changing and trying to adapt to each change. My Support Worker still visits occasionally and I really appreciate those visits and very much look forward to them, I really hope they can continue. Although I’m not improving, having a professional to talk to and check in with and also have a link back into psychiatric services when I’m well enough again to attend appointments is really important to me. If you have any suggestions of things I could be doing to help myself improve then I would appreciate them, I am nowhere near well enough to attend group therapy or any kind of appointments, as I mentioned before, I still struggle every time to visit my grandparents at set times and any kind of deadline or time pressure causes me overwhelming anxiety and increased IBS symptoms and attacks, but if there are any self-help tips or resources I should be made aware of then I would really like to know.

Just to make you aware, my GP has now left my surgery and I don’t know who I’m under the care of now, I’ve not met any of the doctors currently practising there. I do not want to be discharged back to their care and wish to remain under yours so that I don’t have to go through the lengthy waiting list process again when I’m eventually well enough to attend appointments and engage with services. I know you’ve not suggested discharging me, I just wanted to make it very clear that my wishes are to remain within your services.

Kind regards,

Lucy